Hope for Home

Hope for Home and Age UK Lambeth :Magnolia  Club          

 



 

Our partnership with Age UK Lambeth continues to flourish, despite the impact of the pandemic. Here is a photo from January 2022  of attendees at our Magnolia Club in Gipsy Hill, reveling in  a wonderfully creative embroidery session. 

 

This was hugely enjoyed by all, and we are so pleased that the group continues to expand. 

 

We are so very grateful to Age UK Lambeth  for their work in helping us  to reach people with dementia and their  unpaid carers in their local communities in the two drop-in groups that Hope for Home funds in the Borough.


                                         Donation from Pumpkin :Christmas 2021





Hope for Home was delighted to receive a magnificent donation of £500 from Pumpkin, the travel food experts, as a result of being nominated in their Christmas Draw  by one of their employees, Cassie Burridge.


Cassie works for Pumpkin from Blackpool railway station. We were thrilled and utterly overjoyed to receive this generous donation for our work, and are very grateful to Cassie, and to Pumpkin for their support.

                             Hope for Home Conference November 2021:

How to Die Well with Dementia at Home



Hope for Home was delighted to host a virtual conference in this year of the pandemic, having sadly postponed our annual conference from 2020. This year's conference was a terrific success, with over 60 attendees present.

We were very privileged to welcome truly inspirational contributors, including Nicola Kendall from Durham talking about “The Art of Dying”: How we die is a legacy to those we leave behind, so how can we make that legacy a positive one?, Sally Muylders, Community Engagement Manager, St Clare Hospice, Essex, talking  about Starting a Namaste Care Project during a Pandemic:” A story of lessons learned and of unexpected benefits” , as well as several other inspirational speakers running interactive workshops for small groups. 

 

Topics here included Namaste Care at home, Supporting from Diagnosis to End of Life - improving outcomes for carers of people  living with Dementia at home, Caring for the  carers of people with dementia,  and A Question of Meaning - Playlist for Life.                       


The feedback from attendees  was most encouraging, and on this basis we plan to

Hold our next conference probably virtually, in 2002.

We are enormously grateful to the IT team at Ardgowan Hospice, and to the Linda McEnhill,  their Chief Executive, and our Trustee, for hosting this and making it happen so seamlessly.

 




                                     Hope for Home Conference

How to Die Well with Dementia at Home

Tuesday 23rd November 2021 from 10.00am - 4.00pm via Zoom

 

10.00 – 10.15   Introduction and Welcome: Sarah Burnard, Trustee, Hope for Home

 

10.15 – 11.00    Plenary session 

The Art of Dying”:

Nicola Kendall, Namaste Care International Champion for Hospices and PhD student

                        How we die is a legacy to those we leave behind, so how can we make that legacy a positive one?

                        Main learning point:

                        The COVID pandemic has brutally exposed and exacerbated the social isolation which     people living with dementia and their families experience. It has highlighted the          importance of supporting and enhancing the web of relationships which exist around     that family, as well as the benefits of facilitating good planning for end of life care.

 

11.00 – 11.15    Morning Break

 

11.15 – 12.15    Morning Workshop Sessions (Participants choose one Workshop A, B or C)

 

                        Workshop A:  

                        Working with People with Dementia to Develop Anticipatory (End of Life) Care Plans 

                        Workshop Lead: Jim Melville, Manager, Campbell Snowdon House, Bridge of Weir,                               Renfrewshire, Scotland

 Workshop outline:        

Anticipatory care planning is about choice and self-determination establishing a resident’s views and wishes about their journey ahead in the future. For someone living with Dementia how do we help plan their journey.

Main learning point:  

·       Anticipatory Care Plan - When / Where / Why 

·       Involvement of my plan  

·       The benefits of good ACP 

·       Good life before good death

 

                        Workshop B: 

                        Namaste Care: Honouring the Spirit Within

Workshop Lead: Joanne Morton, Namaste Lead, St Joseph’s Hospice, Hackney, London
Workshop outline:

·         Brief Introduction (what it is, background, model)

·         How Namaste care makes a difference

·         Case Study - discussion with volunteers 

·         Carer Input 

·         Q & A session (15-20 mins)

Main learning point:

To enable carers to use Namaste approach to improve quality of care at the end stage of life. 

 

 

 

 

11.15 – 12.15    Morning Workshop Sessions continued (Participants choose one Workshop A, B or C)

 

Workshop C:

A Question of Meaning - Playlist for Life

Workshop Lead: Andy Lowndes, Vice Chair and ‘The Music Detective’, Playlist for Life

                        Workshop outline: 

In this presentation Andy will describe the benefits personalised music can have on health and wellbeing and describe the effect music has on the brain. 

Main learning point:

Andy will demonstrate how to build a playlist utilising the Playlist for Life approach.

 

12.15 – 13.00    Plenary session: Feedback from Workshop leaders - A, B, C

 

13.00 – 13.45    Break for Lunch 

 

13.45 – 14.30    Plenary session

                        “Starting a Namaste Care Project during a Pandemic…  a story of lessons learned and of unexpected benefits”  

                        Sally Muylders, Community Engagement Manager, St Clare Hospice, Essex 

                        Main learning point:

                        Unexpected outcomes over time, the power of momentum and resulting, surprising,      improved sustainability.

 

14.30 – 15.30    Afternoon Workshop Sessions (Participants choose one Workshop D, E or F)

 

                        Workshop D: 

                        Supporting from Diagnosis to End of Life - improving outcomes for carers of people       living with Dementia at home 

Workshop Lead: Gina Gardner, Dementia Support Worker, St Giles Hospice       (Thelma Harvey Prize winner) and Pat Roberts, Lead for Dementia Support, GreenSquareAccord Housing Partnership, Staffordshire

Workshop outline: 

Describing how The Unpaid Dementia Carer at home course came about, how it developed through COVID, and the issues that arose, including the different types of Dementia, the importance of Nutrition and Hydration, and planning for the future with Advance Care Planning.

                        Main learning point:

                        The informal carers course aims to equip people with added knowledge and the confidence to support their loved ones from diagnosis to end of life by covering a range of topics including how carers can look after themselves, how to deal with challenging behaviours and support around having Advance Care Planning discussions.

 

                        

 

 

 

 

14.30 – 15.30    Afternoon Workshop Sessions continued (Participants choose one Workshop D, E or F)

 

Workshop E:

                        Who Cares for the Carers

                        Workshop Lead: Graham Gardiner, CEO, Age UK Lambeth, London  

Workshop outline: 

Graham will be looking at not only what support carers can access, but also exploring how carers can look after themselves whilst being responsible for looking after someone else.  This can be guilt inducing, fraught and frustrating. Is there another way of looking at this? Let's spend some time thinking about strategies that work and of course finding resources to help. 

Main learning point:

At the end of this session, we hope carers will feel more optimistic about looking after themselves and getting the help that they need.  We hope that service providers help find ways to plug the gaps. 

 

                        Workshop F: 

                        Carer Resilience  

                        Workshop Lead: Sarah Russell, Lead Nurse for Palliative and End of Life Care,                                        Portsmouth Hospitals University NHS Trust

                        Workshop outline: 

We will explore the evidence and experience of the duality of caring/carer resilience and what this means for health and social care practitioners and us as individuals.

Main learning point:

At the end of the workshop, participants will take away one action point for their practice and experience.

 

15.30 – 15.45    Plenary session: Feedback from Workshop leaders – D, E, F  

 

15.45 – 16.00    Closing remarks: Harriet Gross, Chair, Hope for Home

 

 

 

 

For further Conference details please visit: https://ardgowanhospice.org.uk/hfh21/  

Zoom link for Conference will be emailed to participants on Friday 19 November 2021

This event may be recorded

                                           

                                BOOK YOUR PLACES  NOW!!


                                Hope for Home Conference

How to Die Well with Dementia at Home

Tuesday 23rd November 2021 from 10.00 am - 4.00 pm

 

 

Click on this below link for further info               

                                                How to Die Well - Hope For Home Conference 2021 - Ardgowan Hospice

 

                                    Zoom joining instructions will be communicated to the email address provided at time of purchase. 

 

 

Building on the success of the 2019 conference, Hope for Home and Ardgowan Hospice are hosting another Conference, this time with the focus on enabling people with dementia to die at home.  Due to the constantly changing pandemic environment the Conference will be held virtually but will still include both presentations and workshops so that we can continue to share best practice, learn from each other, and connect around the desire to ensure the very best end of life care for people with dementia dying at home.

 

Speakers comprise a diverse range of experienced practitioners (including the winner of the Hope for Home, Thelma Harvey Award 2019), researchers and people with lived experience and consequently this Conference will have something for everyone.  

 

 Hope for Home Conference 2021

How to Die Well with Dementia at Home
Tuesday 23rd November 2021 from 10.00 am - 4.00 pm via Zoom
 

Building on the success of the 2019 conference, Hope for Home and Ardgowan Hospice are hosting another Conference, this time with the focus on enabling people with dementia to die at home.  Due to the constantly changing pandemic environment the Conference will be held virtually but will still include both presentations and workshops so that we can continue to share best practice, learn from each other, and connect around the desire to ensure the very best end of life care for people with dementia dying at home.
 

Speakers comprise a diverse range of experienced practitioners (including the winner of the Hope for Home, Thelma Harvey Award 2019), researchers and people with lived experience and consequently this Conference will have something for everyone.  
 
More information to follow early next week …..!!!
 
Please feel free to share.

 SUPPORT FOR HOPE FOR HOME FROM THE INNER WHEEL CLUB OF MARGATE, AND  MORRISON’S IN MARGATE! 

 

Hope for Home has received fabulous support from the Inner Wheel Club of Margate in 2021.  Following a virtual Inner Wheel Club meeting with Sarah Burnard, Trustee of Hope for Home  in  February 2021, the group committed to fund raising for Hope for Home for the next two years, once Covid restrictions had eased ! As a result we have recently received a hugely generous donation of £600.00, £200.00 of which was raised by the staff at Morrison’s in Margate. This money will go directly to fund our drop-in groups with Age UK Lambeth. Hope for Home is hugely grateful for this support.


 HOPE FOR HOME WELCOME FIONA THOMSON !

 

 

Hope for Home are delighted to welcome Fiona Thomson to the Board of Trustees. Fiona joined us a potential  new Trustee in January 2021 and is already doing sterling work helping us a Board to refine our ideas about out work and its impact. 

 

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Fiona says: “I work in Operational Management around the country, working in making anything more efficiently, from defence to pork pies !

 

 I live in Glasgow with a few friends and a few kittens, and,  like many others,  got very into DIY and indoor plants over lockdown. When the weather allows I like to get out hiking and camping as often as I can.

 

I am especially committed  to work with and support Hope for Home because I have a family history of dementia and could see the impact first hand.  I am keen to help access to education around the disease and to help people achieve their preferred outcomes for their loved ones.

 

 

 OUR FINANCES 

 

We remain a small registered charity in terms of our income. Like so many charities  during the pandemic our donations  have dropped, as fund - raising opportunities  closed down. We  do need money to continue our valuable work for the group of people we aim to support, for whom, all too frequently there is  no provision.

 

 We rely on private donations to keep our work going, a on fund-raising by our supporters, and on legacies. Our overheads are deliberately kept very low -  chiefly comprising our  annual accountancy fee and our insurance. We do not pay for office accommodation, and  we have no paid staff, all our work being carried out by a small band of  very dedicated volunteers.

 

Please would you consider giving us a donation? You can do this via our website, or you can send a cheque, made out  to Hope for Home, and sent to 32 Foxes Dale, Blackheath,  London,SE3 9BQ.

 

 OUR ANNUAL CONFERENCE 23RD NOVEMBER 2021!

 

Following the success of our London  conference in 2018, and our subsequent conference in November 2019 ,we are planning to deliver a  virtual conference on 23rd November 2021, via zoom,  with the theme of  “How to die well with dementia at home”.  The format will involve live presentations and interactive workshops. Contributors  include Nicola Kendall , Namaste Lead, St Cuthbert’s Hospice, Lourdes Colclough, Linda Mc Enhill, Trustees of  Hope for  Home, Kim Connell ,Deputy CEO Age UK Lambeth,  and Colette O’Driscoll, Namaste Manager, St Joseph’s Hospice, Hackney, London.

 

 More details to come….

 

020 8463 0128

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