The Charity- Its History and Background
Hope for Home is a registered charity, set up in February 2008, which is committed to:
- the relief of elderly persons with dementia and/or advanced Parkinson’s Disease and and/or similar disabilities and the relief of carers who are caring for these people at home in the United Kingdom
- advancing the education of the public in dementia and/or advanced Parkinson’s Disease and/or similar disabilities
The organisation was formed in response to a perceived lack of support for families and friends who were looking after their loved ones who have dementia and/or advanced Parkinson’s Disease in their own family home, and it is these people that we are trying to help as best we can.
We are also committed to helping health and social care professionals who are working in the specialised area of dementia and/or advanced Parkinson’s Disease care.
Who We Help
We aim to help:
- Carers of people with dementia and/or advanced Parkinson’s Disease, and their relatives and friends
- Health and social care professionals working in the specialised area of dementia and/or advanced Parkinson’s Disease care
- People with dementia and/or advanced Parkinson’s Disease
What We Do
In addition to the information on this website, we also provide practical help by providing advice and information about care for people with dementia and/or advanced Parkinson’s Disease at home.
To promote the concept of care at home, we offer lectures and talks to carers, health and social care professionals working in the area of mental health and care of elderly people, and to the general public, as well as presentations at conferences.
Our Vision and Values
The root of our vision is the acknowledgement that every individual has unique needs, wishes and interpretation of the world. Each individual has the right to have this uniqueness recognised and to be treated with dignity and respect at all times. People with dementia and/or advanced Parkinson’s Disease often have this right ignored and they and their carers are given little or no option about treatment choices or where they wish to die. Hope for Home passionately defends and supports the right of such people to be cared for and remain in their own homes.
Respect for everyone Hope for Home deals with:
- people with dementia and/or advanced Parkinson’s Disease and their carers
- health and social care practitioners
- other associated charities
- the general public
Commitment to Quality
- Commitment to maintaining and improving the quality of home care available to people with dementia and their carers by influencing the practice of medical and health and social care practitioners.
- Ensuring the quality of support and advice provided by Hope for Home by training staff and developing codes of conduct and protocols in partnership with Hope for Home service users.
- Hope for Home will be honest about what support and advice we are able to provide and always signpost people to other agencies where necessary
Hope for Home is an independent organisation not influenced by any political, religious or commercial interest.
- Hope for Home considers that each individual with dementia is uniquely worthwhile and special, requiring the best care and support. We aim to support those who wish to continue living at home with friends and family, and we wish to promote knowledge, best practice and to support others in developing expertise.
- We will always try to be honest and impartial, giving advice that is best for that individual while accepting that sometimes this advice cannot be carried out by carers and families.
Commitment to the Principles of Equality and Diversity
- For Hope for Home equality and diversity are integral to the organisation. Its Trustees come from backgrounds of varied and differing faiths and beliefs and Hope for Home has a working culture that recognises, respects and values those differences, harnessing them for the benefit of the organisation.
- Hope for Home will defend the equal opportunities of people with dementia and/or advanced Parkinson’s Disease to have the choice to receive care in their own homes or hospice-type care where this is more appropriate
- In addition, we seek to advise people regardless of their race, creed, or colour. We will not tolerate bullying, abuse or bad practice or any other form of discrimination.
In terms of daily practical help we have a ‘Contact Us’ page on the web site for people to email queries and a telephone helpline where people can leave a message and we can get back to them.
These forms of contact offer basic information and advice on caring for people at home, and signpost carers to services where appropriate. Telephone contact also provides emotional support by listening to carer’s specific problems, and helping them to reach a solution where possible.
The charity has no paid staff, minimal overheads and is entirely reliant on donations.
Each Trustee has specialist knowledge and/ or experience of the challenges associated with delivering care for people with dementia and/or advanced Parkinson’s Disease.
Significantly, two of the Trustees have themselves had recent, direct experience of caring for a relative with dementia in their own family home, each for several years.
The Trustees are:
- Sarah Burnard (Treasurer)
- Rev.Sandy Christie
- Professor Harriet Gross
- Thelma Harvey ( Chair )
- Dr. Adrian Treloar
Sarah has over 35 years experience of working both in and alongside the National Health Service, first as a physiotherapist specialising in care of elderly people at home, and then as a senior general manager. She also is qualified to teach adults. Sarah has worked in many multi-agency settings, with both clinicians and managers, and this work has included working with Social Services, the voluntary sector and the Police. Sarah also has extensive experience in developing public health policy.
After graduating in law, Sandy spent 11 years as an investment banker with Morgan Grenfell, including periods in Tokyo and Frankfurt. He then trained for ordination, and since 1994 has worked in three parishes in South London. He is currently Vicar of St Michael and All Angels, Blackheath, London.
Harriet is a psychologist and is currently working as Director of Innovative Special Projects at the University of Lincoln, where until 2013 she was Head of the School of Psychology. She has recently (2006-10) been Chair of the British Psychological Society (BPS) Parliamentary and Policy Group, and at present is Associate Editor of the BPS magazine ‘The Psychologist’.
Thelma has a background of inter-professional collaboration, having worked for many years as a physiotherapist in the NHS and Social Services, focusing on elder rehabilitation and community care.
In recent years Thelma has had personal involvement supporting several close friends who developed dementia.
In July 1997 Thelma became an Independent Consultant, specialising in the development of standards in the health service and equity of health services delivery.
Dr Adrian Treloar
Dr Adrian Treloar is a Consultant in Old Age Psychiatry at Oxleas NHS Trust and a visiting Senior lecturer at the Institute of Psychiatry, London. In addition to being director of Medical Education for Oxleas NHSF Trust from 1999 to 2007, he produced research and helped to write national guidance on the ethics of Covert Administration of medicines.
He has developed considerable expertise in the management of dementia through until death at home, and has lectured nationally and internationally on the palliative care of Dementia, as well as delirium and the management of Parkinson’s disease.
He has pioneered “hope for home” type dementia care, supporting several dozen patients with dementia at home until their death, and both researched and developed understanding of how this can be achieved.
He is also actively researching delirium and also the use of memantine in dementia.
Minutes of the last AGM
Hope for Home is entirely dependent on donations for its work. In practice, this means we are entirely dependent on money given by individuals, and by other charities and organisations. Hope for Home is registered for gift aid.
This is the report of the Directors for the year ending 30 November 2014
Hope for Home Ltd
Legal and administrative information
Company No: 6419587
The organisation is a charitable company limited by guarantee, incorporated on 6 November 2007 and registered as a charity on 22 February 2008.
The company was established under a Memorandum of Association which established the objects and powers of the charitable company and is governed under its Articles of Association. Under those Articles, one third of the directors (those longest in office since their last election or appointment) retire from office – and are eligible for re-election – at each Annual General Meeting.
Directors and Trustees
Miss S Burnard
Rev AR Christie
Professor Harriet Gross
Miss T Harvey
Dr AJ Treloar
32 Foxes Dale
London SE3 9BQ
Richard Hewson & Co
21 Corner Green
London SE3 9JJ
Beverley Morris and Company
35 Montpelier Vale
London SE3 0TJ
Charity Registration Number
Hope for Home Ltd
Report of the directors
for the period ended 30 November 2014
The directors (who are also the charity’s trustees) present their report and the unaudited accounts to 30 November 2014.
Objects of the charity
The charity’s objects are:
(a) the relief of elderly persons with dementia and/or advanced Parkinson’s Disease and/or similar disabilities and the relief of carers who are caring for these people at home in the United Kingdom; and
(b) advancing the education of the public in dementia and/or advanced Parkinson’s disease and/or similar disabilities.
Main activities undertaken for the public benefit in relation to these objects
In planning our activities we kept in mind the Charity Commission’s guidance on public benefit at our directors’ meetings. The focus of our activities was rooted in the concept of supporting people who care for their loved ones with dementia and/ or advanced Parkinson’s disease in their own homes.
Our activities in our seventh year included: raising money; responding to enquiries and requests for help; preparing publicity material; maintaining and building upon our volunteer support group; maintaining and improving our website; undertaking public relations and publicity activities and continuing our two new collaborative projects with two charities, Help the Hospices (now Hospice UK) and St Joseph’s Hospice.
Summary of our main achievements in our seventh year
Our main achievements in our seventh year were directly related to continuing two major projects with our two established partner charities. The first of these was launched and started in October 2013 with Hospice UK.
The underlying premise for this exciting new collaboration was our wish to help those hospices who wish to start or further develop services for people with dementia and their families and friends.
We believed that offering those hospices that may be hesitant, but willing, some practical ideas and advice about how to start services, however small at the start, might be a source of encouragement to help them initiate new ways of helping people with dementia and their carers.
This collaborative project funded a new piece of focused research, paid for by Hope for Home, which was rooted in particular desired outcomes. We identified the following outcomes as initial guidance:
- examples of good practice in the sector relating to dementia with particular reference to supporting carers and families, possibly including international examples e.g. Japan
- literature review of good practice
- teasing out critical success factors from different successful models
- production of a ‘toolkit/think piece’ which baffled CEOs can pick up, read, think about and use in practice to start/develop services
- a planned launch and roll out of the findings so that learning points can be shared and used in practice across the UK
- offering support to a special interest group via Hospice UK for those hospices who wish to start services for people with dementia, together with those that have already established services, with a view to sharing good practice, mutual collaboration and support, and information sharing.
This collaborative partnership has proved to be very successful and has worked very well indeed.
St Joseph’s Hospice
Our second new major project is another collaboration and partnership, this time with St Joseph’s Hospice in Hackney East London. St Joseph’s is the oldest hospice in the country and has a very well established reputation for excellence in the field of palliative care.
In May 2013 Hope for Home funded a training day at St Joseph’s Hospice which was given by Professor Joyce Simard, the originator and expert in the End of Life Care Namaste approach for people with dementia. This event was made available free of charge to all the staff and volunteers at St Joseph’s hospice and also to anyone else who had an interest in this subject.
The term ‘Namaste’ means ‘honouring the spirit within’ and Namaste Care involves a holistic approach towards caring for people with dementia. It includes the use of touch, music, aromatherapy and other creative arts. It has been used for many years in the US and recently in some areas in England, mostly for people who live in care homes. Our project delivers Namaste Care to people with advanced dementia who are being cared for in their own family homes.
Following our sponsored event with Professor Simard Hope for Home and St Joseph’s Hospice signed an agreement to start a new joint Namaste Care service for the residents of the London Borough of Newham to start in April 2014. This service is now in its second very successful year, providing much needed Namaste Care and support for the residents of Newham who are caring for their loved ones who have advanced dementia in their own family homes.
At the end of November 2014 this new service had: recruited a Namaste Care Manager; developed a two-day training course for volunteers and delivered this training to two cohorts of volunteers; recruited and trained 22 volunteers; visited and assessed 6 residents of Newham who had been referred to the service; delivered a total of 23 Namaste Care sessions to people living with advanced dementia in their own family home.
Already, strong relationships have been formed between families and volunteers as the service ensures that the same volunteer visits the same family for each weekly session. In an area where there is almost no support of a similar kind for people caring for their loved ones with advanced dementia at home, this service provides much needed help and support for families and caregivers.
We believe that this is the first service of its kind in the world. To keep a close eye on its implementation one of our Trustees sits on the projects joint Hope for Home and St Joseph’s Steering Group and we work closely with St Josephs in all aspects of the project.
Results and future plans
The outcome of our successful partnership with Hospice UK was a substantial and comprehensive report. This report was launched at a special Hospice UK conference devoted to dementia in Birmingham England in March 2015 and was very well received. This event included expert speakers from across the UK as well as two of our Trustees, The report, ‘Hospice Enabled Dementia Care’ is available both in hard copy and also on line via the Hospice UK website.
At the conference another charity, St James’ Place Foundation, announced that it was releasing grants of up to a maximum of £30,000, with an overall total of £300,000 being allocated. This was being made available to hospices in the UK for new projects related to the care of people with dementia and their carers. One requirement to receive the grant being that each project proposal had to include evidence that the project was going to carry out the best practice as advised in the joint Hope for Home/Hospice UK report.
Following the conference Hospice UK have started a special interest group for people involved with dementia care which met for the first time in June 2015. Meetings will be held quarterly, and this group is already receiving much interest and support from across the UK
St Joseph’s Hospice
The partnership with St Joseph’s Hospice, delivering the Namaste Care Service in Newham continues to go from strength to strength, with more training programmes being undertaken as more volunteers are recruited to match the increasing demand for this much needed service. The Namaste Care Manager has been invited to speak at several national conferences in 2015 as the service gains increasing recognition for its innovative work and approach.
Statement of Financial Activities for the year ended 30 November 2014
The statement of financial activities shows a deficit for the year of £33,652. We have several supporters who donate regularly through bank standing orders and we are also very grateful for other donations we receive. As we become more well known we are receiving more smaller one-off donations from individuals, many in memory of a loved one who has died, or via others who Nominate Hope for Home as their charity of choice at a particular special event. We also received some donations from corporate donors as part of their corporate responsibility programme.
We had unspent funds of £58,826 at 30 November 2014 but we are committed to funding Namaste Care staff costs of £36.667 over the period to 31 March 2016.
The directors recognise the need to maintain an appropriate level of reserves to meet any unforeseen expenditure which may occur and they believe that the charity should hold £1,000 in reserve to cover expenses in the event of dissolution.
Directors and Trustees
The directors, who are also trustees of the charity, all work on a voluntary basis. The names of the directors (all of whom were appointed on incorporation) are as listed above.
Company law requires the directors to prepare accounts for each financial period which give a true and fair view of the state of the charitable company’s affairs at the balance sheet date and of its incoming resources and application of resources, including income and expenditure, for the financial period. In preparing those accounts the directors should follow best practice and:
- select suitable accounting policies and then apply them consistently;
- make judgements and estimates that are reasonable and prudent; and
- prepare the accounts on the going concern basis unless it is inappropriate to presume that the company will continue on that basis.
The directors are responsible for keeping proper accounting records which disclose with reasonable accuracy at any time the financial position of the charitable company and to enable them to ensure that the accounts comply with the Companies Act 1985. They are also responsible for safeguarding the assets of the charitable company and hence for taking reasonable steps for the prevention and detection of fraud and other irregularities.
Richard Hewson & Co., Chartered Accountants, have indicated that they are willing to be reappointed at the forthcoming annual general meeting.
By Order of the Board,
3 August 2015